About every two hours of every day I end up on the bed. This is my average day. It's not that I just want to lay there and do nothing, it's because I have to. If I sit up too long or stand up too long I end up in a great deal of pain to the point I can actually pass out. For some strange reason my brain will turn off the pain reaction before I hit the floor. This is a false sense of security and very misleading.
I have in the past thought the pain had passed and I could continue on my work or what ever. NOPE. THUMP on the floor I would go. One instance and the last of it's kind, I was in a video chat with several people and one had my address. Well I hit the floor and came too with an EMT and the building manager looking down at me. I had also destroyed a perfectly good set of headphones in the fall. Just lucky I did not pull the PC on the floor...
Some days are worse and some are better. If I do it early after getting up I can sit some place for 3 or 4 hours at a time with no problem on a good day. This allows me to go for coffee and be the hell out of here. But some days I have to cut it short. All but one of my friends get this, but he is in his own little world - sigh...
Right now at this moment I am fighting the great pain of a flair to post this. I don't want to just lay in bed and suffer. I want to actually do something with the time. Sure it hurts more to sit up but it's a trade off. It's bad for me to just give in some days and this is one of them.
There is really no relief for the pain that I am willing to suffer the side effects of. I mean when it's bad (worse than now) and I am literally crying and rocking in the bed praying for it to end it might be nice. But for the most part I don't want the feeling of being disconnected that I get with narcotics. The other side of it is, they don't do the job well for me. I am naturally very resistant to them. So this makes the dosage dangerous if I am to get relief.
You might find this strange but I get relief from holding my Pusheen kitten stuffed toy in bed when I am suffering. It makes it more tolerable some how and I am very lucky to have that happen.
Well it's time to go lay down now. But I will wish you a happy day (or night) and say so long. Peace - Dave :)