Friday, May 18, 2018
A friend makes hese wonderful colouring books. She does them on her iPad and then imports them to her Mac to finish up and set up for the books. This will keep me busy for years to come. I don't do them often so it will last me. http://www.blurb.ca/user/SimplySuja is the link to buy them.
Monday, May 14, 2018
So this is a 6 inch long white hair. Not one clue where it's from but I keep getting them on the same leg. The strange thing I it's been haoohappe for years now and soans 2 buildings I've lived in. The other thing in this place is green foam rubber bits and black fuzz. I have no idea where hey are coming from as well. Is there is starting to be bright red fuzz. Again no idea. LOL I'll never know but I'm interested in where this is all room.
1 Severe pain. Starts in the neck then my shoulders then the left side of my chest and down my back into my legs. Neck is much worse than the rest. If it's bad enough I get an upset tummy with it.
2 Random itching all over my body and my face is always much worse. Sunlight makes it worse. There is often redness on my face with this. Nothing makes it stop.
3 Tired even if I sleep well. I can drink coffee till I'm jumpy and I'm still tired as hell. The more I do in the day the worse it gets. If I push the pain will come. Cleaning day is always a killer.
4 I forget words often. The more fatigued I am the worse this is.
5 Overactive bladder. I pee way more than normal. I can get dehydrated very easy if I don't drink more than is normal.
6 IBS like symptoms. But not with the same triggers. Does not matter what I eat or drink it will happen.
7 Sensitive skin. Often comes with the itchy. Even clothing will cause the sensation of burning and pain and make the itching worse. Even the wind causes it to be worse.
8 Feeling like I'm drunk. I get dizzy and spaced out just the same sensation of being drunk.
9 Visual sensation of liquid on my eyes. Blurs the vision.
10 Headache that's lasted for 18 years. It gets worse in a flair and comes with light sensitivity.
11 Food triggers. Processed foods and beef or pork can cause a flair. Sugar will always cause a flair.
12 Feeling I'm being pricked at random all over the body with a needle.
13 Bug moving on me sensation mostly on my scalp.
14 Sweating for no reason even if it's cold.
15 Recurring rash in several spots on my body. I keep them clean and dry but it still happens.
16 Weakness. I don't seem to be able to lift as much as before or open jars like I used to. Even standing is a problem at times.
17 Scent sensitivity. I get an allergic like reaction to scented products and there are very few that don't bother me.
18 Muscle cramps at random on my back, sides of my torso and legs. This last while the hands are in the list as well.
19 Terrible memory. It can take a lot of effort to remember things and if I don't put things in my phone calendar it's gone forever. Names are the worst for this.
20 No set time limit for a flair but most of them start at night. Most only 8 hours but can last week's. CBD oil helps me.
21 Sitting or standing for long will cause my muscles to hurt and cramps to happen. I need get up or lay down now and then. Coffee outings always give me problems.
22 Bothered by a lot of sounds or loud sounds. This sounds strange but it can cause a flair. At the least it makes me unable to understand people talking to me without great effort.
23 No temperature regulation. I can go from hot to cold and back in a room with a regulated temp. I can also feel hot on my head, hands and feet and cold on the rest of me.
24 Random twitch of my hands, neck and eyes. You have no idea how often I spill stuff or drop stuff.
25 Cold water or air on me will cause muscles to tighten and give me pain.
26 Feeling of pressure in my head. Like when you have a cold but with a clear nose.
27 Pain in my man bits for no reason.
28 Ringing in my ears when I'm tired even though blood pressure is normal.
29 My feet feel wet most of the time even though they are very dry.
30 My eyes feel dry and hot and itchy. This gets worse as the day goes on. I've put drops in and it does not help.
Friday, May 11, 2018
Sure enough the person immediately blocked me within hours of being tagged together. This for a normal person would be that but evidently he unblocked me to see what I was posting (only guessing but with him it's very certain).
The big lol here is that there is a time frame that I think is 3 months where you can't block them again after blocking someone.
No I have no interest in going farther as I think this was being enough of a dick so I'll leave it at that. But there has been the temptation to go and share 3 or 4 of his posts so it shows in his notifications and drives him into a rage. But there is a limit to how sick my dark sense of humour is. So I'll just leave it at this for ever like.
There was another person who I ended up blocking that just kept making new accounts and literally 90% or more of my blocked list is him. You see this one just kept using his real name and the same profile pick and friending the same few people and as soon as the fellow would comment poof blocked again.
Must be a terrible fate to be so obsessed with someone you go to these lengths. I mean I'm kind of curious and a bit nuts but wow, when it becomes a large part of your life to see every last thing a person or people do online, you need some serious help.
Anyhow I'm off to watch my YouTube feed. Have a good weekend and may you be at peace. Huggles.
Thursday, May 10, 2018
Tuesday, May 8, 2018
Often people with fibromyalgia get "you don't look sick". The thing is after years of having to deal with day to day life when in pain, you tend to learn how to hide it. This then becomes second nature to you. We do this rather that deal with questions from random people all the time.
It gets to the point that we don't seem to be reacting to pain and this causes people to not think we are in pain. Like any mask people wear it hides the true self from the world. It also makes doctors less likely to understand the pain level or believe you have pain.
We also tend to push it some times when we are not well so that we can get things done. This never ends well and will put us with days or for some weeks with extra pain. But for people like me who has no one else, it is a must. After all no one will shop or clean for me. All my friends in town are about as disabled as I am after all.
Like so many other illnesses it's invisible to the world. There are no indications we are sick. The same goes for depression, anxiety and a never ending list of others. So no we don't look sick. Mist people who are don't.
Sunday, May 6, 2018
Monday, April 30, 2018
As for his son he got hold of me on messenger and it's lucky I even saw the message request. After a brief interaction I found out my brother was dead.
I thought about calling my cousins but they have had a sad lack of interest in our lives to this point. I figure they would not care one bit, so why bother.
It's strange that after all the stuff he had done I stilled loved him and I cried for his loss. After all he ripped mom off for all she had and we both still forgave him.
Maybe it's because I know his life for years was sad and lonely. He was also living in pain, way more than I have.
He drank away a family and his friends. He left behind nothing of value. But he was my brother. We where both adopted but he was still like blood to me.
I will miss you my brother. You can rest now. You are free from the bonds of the bottle and the pills. I only wish I could have said goodbye, but that was denied me. Rest well man.